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In 2013, I was diagnosed with Stage IV Thymoma, a rare cancer. I call it The Nuisance. 2018 brought round two and 2019 kicked off round three. I am working to live each day "As If" - As if I am healed, as if I have no worries, as if I have no fear! This blog chronicles my journey through life and the lessons learned. What was meant to keep me down has given me more than I could ever have dreamed. I hope it helps you on your path as well!
In order to access some new features, this blog is moving to www.itza-doozie.com
You will find all my old posts there and also be able to follow new ones! Be sure and subscribe so you never miss a post!
I have discovered there are two kinds of people in life. Those that like to travel on the interstate and those who prefer the backroads. I am a backroads girl all the way. If I am behind the wheel, I can promise you the path will take us off the interstate and on the more interesting two-lane roads. Now I know that there are pros and cons. But on the backroads, you see things you miss when traveling on a highway packed with 18 wheelers and fast-moving cars all rushing to get to their final destination.
I love to drive through the small little towns and imagine what life is like for the people who live there. I love the old-time cafes and cute downtown squares. I relax when I see the animals grazing in the fields and birds flying through the air. I love to see old cars and old barns that have become art as they have aged and begun to crumble, no longer serving their original purpose. I love the roadside fruit stands and the historical markers that hold tales from long ago. Someday I am going to stop at every cool little yard sale, every old schoolhouse, and every animal safari/natural cavern along the way!
Now I know there is a downside to traveling the curving backroads. Sometimes on those two-lane roads, you find yourself stuck behind a slow-moving RV or truck. You might just find yourself stuck following a tractor that is taking up more than its share of the road as it moves from one field to another. You have to watch out for the small-town police officer with the new speed radar who is looking to keep the roads safe and his badge shiny. (I may have helped one meet his quota on the way to MD Anderson this week.) You can't go as fast, the road is not as straight, and the pathway may be a little longer, but oh how I love a backroad!
Many a song has been written comparing life to a highway. Old Willie sang On the Road Again. Chris LeDoux, Tom Cochran, and Rascal Flatts all gave us Life is a Highway. And of course, the Beatles sang about The Long and Winding Road. Well, this week we were on the road again, and it was a long and winding road. We traveled the well-worn path of scans, labs, and doctor appointments. Rodney is still not allowed to go into the hospital with me. That can be a Long Lonely Road. I received reports that show that The Nuisance continues to progress which feels like The Road Goes On Forever. None of those pieces of information were too surprising. Unfortunately. Just part of the thoroughfare.
We returned home to have our final appointment with my surgeon yesterday. One good COVID outcome is being able to have some appointments via telemed which at least means we don't have to stay in Houston so long. I'll take it!
I really thought the purpose of the call yesterday would be to just go over the details of our planned surgery that we had discussed previously. I had a few questions to ask but felt like I had a general sense of where we were headed. But life is full of sharp turns in the road. In reviewing my scans there is now concern that there are spots on my diaphragm that will not be surgically removable. (Sharp turn ahead. Reduce speed.) While we will still do surgery, we are now looking at radiation as well. (Detour ahead. Didn't see that coming.) Surgery will involve going through my back, removing a rib, removing the lining from my lung, scraping the chest wall, scraping what they can from the diaphragm, and grabbing anything else that is visible. (Warning. Warning. Obstacles ahead.) Rodney will still not be allowed in the hospital with me. (Single lane highway ahead.) The length of recovery will hinge on how my lungs react to the surgery. (Be prepared to stop.) I had to pull over into a proverbial rest stop and put my head on the steering wheel a moment.
I won't lie. I am overwhelmed. I am shaken. I am sad. I don't know how to prepare for a trip that my husband and family can't go on with me. I don't know what to pack for a journey with so many unknowns. I don't know where to book my stay because I don't know how long my stay will be. I don't know. I don't know I don't know. A huge part of me wants off this backroad and onto a highway where the road ahead is clear, the obstacles are few, the roadblocks are limited, the path is straight. I want the well-lit interstate with the smooth road beneath me. Why me? Why again? And again? And again? Get me out of here!!!!!
But then.
God whispers in my soul to look backward. I turn to look. In the past eight years, I have been on roads much like this. There have been TONS of times when I didn't know where, when, how, or if. And there have been many moments where I felt just like I do now. Shaken. Sad. Afraid. And in every single one of them, God showed up. Every need was met. Every tear was dried. Every pain was ended. And I was never alone. When I look backward I see a curvy backroad with wildflowers I wouldn't have thought to plant. With art I wouldn't have thought to create. With companions I wouldn't have ever met. With interesting stops that I would have blasted right past on the interstate of busyness. I see a road with highs and lows that create a beautiful pathway. I got a few tickets along the way when I tried to rush things and I learned how to slow it back down. It didn't always go as fast as I wanted or as easy, but it was somehow beautiful anyway. And as I look back I am reminded of one of the most valuable lessons of life. DON'T GET SO FOCUSED ON THE ROAD THAT YOU MISS THE FLOWERS!!!
There are lots of things I don't know. But I know this. God is the God of me. He has never failed me. He has never abandoned me. Doesn't mean it is easy. Doesn't mean I don't feel all the feels. Doesn't mean it always ends the way I want. Doesn't mean it goes as fast as I wish it would. Doesn't mean I wouldn't choose something different if given the choice. But it does mean that I have strength, hope, peace, and provision for whatever lies ahead. It means that this backroad can bring beauty if I will look for it. And by golly, I am going to blast some music, roll down my window, and look for some wildflowers! This will NOT be a sad trip!! Hop in the passenger seat with me let's sing real loud!
“I will remember the deeds of the Lord; yes, I will remember your miracles of long ago. I will consider all your works and meditate on your mighty deeds. Your ways, God, are holy...You are the God who performs miracles; you display your power among the peoples.” Psalm 77:11-14
Okay, I have been telling you all that I owe you a story, so before I give you the update on the results of our recent MD Anderson appointment, I must begin with a tale.
When we began this Nuisance journey, our twin boys, Sawyer and Spencer, were 12 years old. They were old enough to know much of what was going on but still young enough to not understand it all. There were three things that were, and still are, the hardest for me when it comes to The Nuisance. One has been watching my parents and knowing how much they want to rescue me from all this. Another has been hurting for my husband, whose family has already experienced such loss with cancer. And the biggest worry of all has been for my children and how all this would impact them. When I lost my hair, I worried they would be embarrassed. When I was in Houston, I worried they would be homesick. When I was in the hospital, I worried they would be afraid. When I was sick, I worried... well, let's just leave it there. But every step of the way, God has provided. He sent family to care for my boys in my stead. He gave teachers to love on them. He sent friends, and the parents of friends, to entertain them when I didn't feel well. He sent my church and work friends to pray for us and meet our every need. Oh y'all, the list is just so long of how he took care of them.
But one of my favorite things God has done is what I call the gift of The Curtains. If the world's a stage, as Shakespeare said, then God has had a way of opening the curtains only enough for the boys to see the parts of the play they could comprehend at that specific moment. Looking back, I see so many examples of how God was only allowing them to see pieces of the unfolding story.
The boys read my blogs as I posted them and have heard me give my testimony a hundred times. I have tried my best to live this life out loud so that it might help someone else along the way. There have been no secrets. I always tell them what is going on before I share it outside the family, so they are never caught off guard if someone says something to them. Our journey has never been for us alone. One time, the boys came to me after a speaking engagement and said, "Mom, you didn't tell us that you had a tumor on your heart." I was taken aback. "Yes, boys, you have heard me say that a million times." (But God didn't let them hear it because their little hearts weren't ready.) Another time I heard, "Mom, you didn't tell me us your cancer was Stage IV. That is really serious!" "Yes, we have told you that before." (But in His infinite wisdom, God knew you couldn't hear it until now.") 'Mom, I didn't know that they had to open your chest for our surgery." "Yes, son, you have seen the scars." (But God didn't want you to be afraid.) "Mom, you never told us..." "Yes, we did, but God knew you weren't ready to hear it."
I began to realize that God was only allowing the boys to see and hear what their hearts and minds could handle. Like curtains on a stage, God only revealed enough for them to see the part of the story He was ready for them to see. The parts they could handle. Nothing more. Nothing less. Sometimes they could handle the whole scene; other times, they only needed to zoom in on a few characters or a small portion of the plot. Like a great director, God knew his audience well and created a story that they could comprehend. What an amazing gift.
Fast forward to the past month. When my surgeon called in January to share the multidisciplinary tumor board's results, Rodney wasn't home. The doctor shared the possibility of surgery and then informed me of the concern that the lymph node treated with radiation in 2018 appeared to be growing. Wait, what?!? Lymph node? That wasn't a lymph node. It was just a spot that was growing too close to my carotid artery. No one ever told us it was a lymph node! "How could they not have told us?!" I thought. When I told Rodney what the doctor had said about that spot being a lymph node, he was as surprised as I. When I told my parents and sisters, their first words were, "Wait, that was a lymph node?" Surely there must be some mistake. I began to dig through my records to show that they must have me confused with another case. But there it was. Not on one report. Not on two. But on three different reports. Lymph Node. Well, I'll be. I see what you did there, God. The Curtains.
Now you need to understand what I do with a report when I get it. I highlight it. I underline it. I search for unknown words and google them and write down their definitions. I compare it to old reports. I make charts and drawings on it to compare sizes of spots from scan to scan. By the time I travel from Houston to Lubbock with that piece of paper in my hand, it is limp from being folded and unfolded, marked and circled, highlighted, and cried upon. There is NO explanation for how I could have missed it except for The Curtains.
In all his wisdom, God knew that I could not handle the fear or worry of The Nuisance being in a lymph node back then. He knew that it would seem just too much to bear, so He kept that hidden behind The Curtains. "Let her see enough to take action, but don't let her see enough to tailspin," He must have thought. "Show her enough, but don't let her think this is impossible." Because at that time, in 2018, I would have thought it was just too much. My boys were approaching their senior year. I didn't want to miss a minute. I had one goal-- for that year to be amazing and to witness every bit of it! Thinking that The Nuisance had spread to my lymph nodes would have sent me down a very dark path. It was hard enough to be away from them while receiving radiation in Houston, but to worry about The Nuisance moving through my lymph nodes and spreading through my body would have been a whole other level of fear. It would have been too overwhelming a "stage." Thank God for The Curtains!
So why now? Why has He pulled back the curtains on the lymph node now? Why not leave them closed? Well, I have three more years of trust tucked under my belt. If The Nuisance was in my lymph nodes in 2018, then I have been given three years of it not spreading beyond the known places. Which indicates that I do not have to shift into panic mode. What God has done in the past has given me faith to trust him with my future. That faith might not be as strong had The Curtains not been in place while the stage was being set. He bought time to not just tell me (because I am stubborn and sometimes don't listen) but to show me that this will be okay. Somehow this will be okay. No matter what. My mind has not raced to the worst-case scenario because my heart and soul are stronger now. I am more rehearsed for the next act.
When I was younger, I always wanted God to just show me what my future held. Holy Cow! I sure am glad he is wiser than me! Seeing my lot would have scared the britches off of me! I would have quit before I started. I would have given up before I took the first step on stage. And I would have missed the most fabulous blessings along the way.
So here we are. God pulled back the curtains to allow us to see the possibility of a growing lymph node in addition to the other spots we already knew about. We spent most of last week in Houston doing the biopsy on the lymph node. We know surgery is necessary either way, but it is fast-tracked if the lymph node is involved. And fast-tracked means I would have to be alone. Even with that knowledge, there has been more peace than fear. More trust than doubt. More hope than worry.
Yesterday we received the pathology report. The Curtains have opened, the doctor has entered the stage and his opening line is the lymph node is okay! No signs of The Nuisance there. Praise God! What peace and joy I would have forfeited if the timing of The Curtain opening had not been so perfect! Surgery, and it's a doozie, is in the future, but it is not an emergency. Hopefully, that means we can get a little further past COVID, and Rodney will be allowed in the hospital with me. Or maybe The Curtains will be pulled back a little further to reveal a miracle. If He can keep me from seeing written words on three reports then He can certainly pull that off as well. We currently plan to go to Houston in June to reevaluate. In the meantime, we will trust the director and enjoy the show! Living As If!
How good to be loved by a God who knows us so well and cares for us so much. I am grateful for The Curtains.
Recently I have taken up Yoga. With all the craziness in the world adding in a bit of calm seemed like a pretty good plan! I have downward dogged, cat-cowed, and happy babied myself into thinking this is something I can really get into. A little breathing, a little stretching, a bit of strengthening, and a dash of balance. I can handle that! I was feeling pretty good about myself. That is until Standing Tree Pose…with my arms overhead…and my eyes closed. That was the kicker. As long as I could keep my eyes focused ahead I was AWESOME!!! Okay, I was decent, but at least I was upright and not wobbling all over the place. But the second I had to close my eyes, BOOM, the earthquake hit, I started falling and the Tree Pose became more of a rolling boulder. Yes, a beautiful sight to behold. Not very zen!
How many times a day does that happen to you? You’re focused, you’re balanced, and then BOOM the wheels fly off and you find yourself drowning in a sea of chaos. 2020 and its step-sister 2021 are the perfect pictures of that! How in the world are we supposed to stay balanced and peaceful in a world gone crazy? And boy, do I mean crazy!!! The answer is yoga. No, not the practice. The acronym. (Okay, so I just made this up, but stick with me here. It works!). Want peace and calm to rule your heart? Do Y.O.G.A.- You Only Gaze Ahead.
Disaster happens when we lose focus and start looking to the left and the right or when we squeeze our eyes shut and get lost in our own heads (yep, that can be the badlands). We have to remember that perfect peace is straight ahead! Isaiah 26:3 says, “You will keep in perfect peace those whose minds are steadfast, because they trust in you.” I see two parts to that verse. First, we have to be steadfast (focused) and second, we have to trust God. If I am focusing on God, but don’t really trust him to care for me I will wobble. If I trust Him, but keep my focus on the chaos I miss out on all He has to offer.
Peace comes when we focus on the one who is in control instead of focusing on the world around us. Colossians 3:2 says, “Set your minds on things above, not on earthly things.” Think about the last time you were thrown off balance by anxiety or fear. My bet is you were focused on earthly things-- politics, social media, news, and other people. Those things CANNOT bring you the peace and balance you are seeking.
So follow me for a little Y.O.G.A. lesson straight from God’s Word. I want you to breathe deeply with me as you read these words that were written just for you!
Breathe in. “Whatever is true, whatever is noble, whatever is right, whatever is pure, whatever is lovely, whatever is admirable - if anything is excellent or praiseworthy-think about such things.” Breathe out.
Breathe in. “Pay attention to what I say; turn your ear to my words. Do not let them out of your sight, keep them within your heart; for they are life to those who find them and health to one’s whole body”. Breathe out.
Breathe in. “Let your eyes look straight ahead; fix your gaze directly before you. “ Breathe out.
Breathe in. “Do not worry about your life, what you will eat or drink; or about your body, what you will wear...but seek first his kingdom and his righteousness, and all these things will be given to you as well.” Breathe out.
Life is crazy. God is not. The world is chaotic. God is peace. Do your Y.O.G.A. each day -- if You ONLY Gaze Ahead you will discover the peace you crave and the balance that you desire. No downward dog needed!You do not have to know me for two minutes before you know that I am a sunshine girl. All. Day. Long. I seriously mourn the shortening of days, desperately dread dark seasons, and anxiously await the warmth of the sun on my skin. It is amazing to me how closely my life force seems to be tied to that warm light. It may be a little crazy, but it is medicinal for me. If you were to scroll through my phone you would see pictures of sunrises and sunsets, of sun pouring through trees and lighting up fields of sunflowers. It delights me. My Mimi always said no matter how bad you feel you need to get outside and get some sunshine every day. Maybe she is the source of my genetic predisposition. I love the light! (P.S. It is 86 days until the time changes back. WOOT WOOT!!!!)
I suppose that in some ways we all share that trait -- a desire for warm, bright days. We love the days where the bills are paid, the family is well, the job is going smoothly, all is right in the world. There are no clouds in our proverbial sky, no storms on the horizon of life, and we want those days to be n-i-i-i-i-i-i-c-c-e-e-e- and l-o-o-o-o-o-o-o-o-n-n-n-n-n-g-g-g-g-g like a warm summer day. BUT, just like that time change that I hate so much, life is filled with seasons of darkness-- you know, like 2020?!?! The bills aren't paid and you have no idea how they will be. The kids are quarantined for the third time and the cabin fever is strong. Work is, well, let's just say that the Tilt-a-Whirl at Joyland doesn't shake you up NEARLY as much as trying to function in a COVID world. You miss your family. You miss your friends, and for goodness sake, you miss your favorite Mexican Food Restaurant!!! It is dark. It is depressing. And it seems - like it -will last -FOREVER!!! We just want that light back.
I have to admit I have been wrestling some darkness this week. Lately, it seems like it rains the whole time we are at MD Anderson in Houston making us have to stay indoors. As small as this seems it has a big impact on my coping mechanisms. The news we have been getting has been heavy, too. It feels very dark. The path ahead seems like a poorly lit, seldom traveled path in a heavily wooded forest inhabited by wolves. I can't see ahead, I can't get my bearings, and I have felt a little lost. I hate these moments when I don't have clarity. Ugh.
Today I asked you guys to pray for me and some telehealth appointments. In my last two visits with the surgeon, he has given the strong impression that surgery isn't a great option right now which leaves us with chemo or a trial. I have felt a little trapped and cornered in a dark, dark room. As I joined the call today I noticed that I had a message in my MD Anderson chart. My appointment had changed from the surgeon to his nurse practitioner. Disappointment. Dark. As she joined the call she explained that my doctor's mother had fallen and he had to leave quickly, but that they had reviewed my case this morning and she could share what he was thinking. She began to say that he believes that the progression means we need to consider resection. Wait, what? I thought that wasn't an option?! She shared that there actually may be several options there. I felt it-- a little bit of warmth. She began to describe them to me. Out of the corner of my eye, I saw a glimmer of light begin to flicker and a little hope begin to bubble. To make a long story short he will be taking my case to the multi-disciplinary board in January. They will talk through the options to determine the best approach. All of the sudden my heart lifted and it was like the sun began to rise a little just revealing a new turn in the path. And that, my dear friends, is the way life works. Just about the time that you think it can't get much darker a light breaks through from an unexpected place. You just have to have your eyes open to see it!
I know that some of you are sitting right there in a dark corner. Your own version of the nuisance has you feeling trapped. Open your eyes and wait with expectation. The time will change again. The light will break through the clouds. The darkness doesn't last forever (it just feels like it).
As for me? There are lots of unknowns ahead and I still can't see that stinking path, but I do feel a little light breaking through. I was sharing with my friend Beth how I was feeling about that and she sent me this picture of her dog Toby.
I recently read a story of an unusual test given by a professor. It went a little something like this. One day, a professor entered his classroom and asked his students to prepare for a surprise test. They all waited anxiously at their desks for the exam to begin.
The professor handed out the exams with the text facing down, as usual. Once he handed them all out, he asked the students to turn over the papers.To everyone’s surprise, there were no questions–just a black dot in the center of the paper. The professor, seeing the expression on everyone’s faces, told them the following: “I want you to write about what you see there.” The students, confused, got started on the inexplicable task.At the end of the class, the professor took all the exams and started reading each one of them out loud in front of all the students.All of them, with no exception, defined the black dot, trying to explain its position in the center of the sheet. After all the tests had been read, the classroom silent, the professor began to explain:“I’m not going to grade you on this, I just wanted to give you something to think about. No one wrote about the white part of the paper. Everyone focused on the black dot – and the same thing happens in our lives. However, we insist on focusing only on the black dot – the health issues that bother us, the lack of money, the complicated relationship with a family member, the disappointment with a friend. The dark spots are very small when compared to everything we have in our lives, but they are the ones that pollute our minds. Take your eyes away from the black dots in your lives. Enjoy each one of your blessings, each moment that life gives you. Be happy and live a life filled with love!”I have a cruel confession. I have this really bad character flaw. I am sorry if you have ever fallen victim to it, but I just can't seem to help myself. When I see someone fall, I just cannot control myself. I find it to be one of the funniest things in the world. Now I am not talking about spiritual falls or failures or anything like that. I am not heartless. I am talking about the good ole fashion, can't get your feet back under yourself, you might just pull something kind of falls. I know I am not alone-- after all, Funniest Home Videos had a million seasons packed with falls that we all busted a stitch over.
Slipping is possibly one of my favorite genres of falls. A good slip can seem to last forever and certainly pulls in all of the body as one flails desperately trying to recover. It makes me snicker just to think about it.
This morning I was reading scripture about that very thing. Psalm 94:18 says, "When I said, "My foot is slipping, your unfailing love, Lord, supported me." As a student of falling, a mental picture came to my mind. I imagined how it looks when someone is learning to skate. Legs are going every direction, arms are swinging wildly, but if you are lucky you have someone who is firm on their feet to help keep you steady. I began to think about times in my life when I have mentally, emotionally, or spiritually felt like I was slipping. In times like these, it is natural to seek something firm to hold onto. Something that can help us regain our balance. And God, in His unfailing love, is happy to support us. Our perspective can seem that a fall is imminent and in those times we long for strong and steady support.
The idea of slipping caught my attention and I began to look for other verses that address that concept. I soon found one that painted a different perspective. Psalm 121:3 says, "He will not let your foot slip-- he who watches over you will not slumber." In the first verse, the author calls out he is slipping and then the Lord supported him. In the second we are told that God does not let our foot slip to begin with--- that he is constantly watching over us-- to the point of never sleeping, never taking his eyes off us. I don't think these verses contradict each other regarding God. I think they point out differences in our vantage point and God's.
There are times in life that I feel I am slipping completely out of control. I am desperately trying to regain my balance and find something to save me then I call to God for support. But from God's point of view, he has me firmly in his hand all along. Like a Father supporting a child, he begins to catch me before I even know I am slipping. From my viewpoint, I am certain I am going to bust it. From his, He is certain I will not. He has me. He never takes his eyes off me. Remember how out of control it felt when we learned to skate? Legs going in every direction, bodies pitching back and forth, hearts racing as we anticipated the fall--- but our parents were steadily holding us up. That is just what God does.
I love the thought of that. I am grateful that when I feel I am slipping that he supports me, but I am even more grateful to think of the fact that he is preparing to support me before the ground beneath me even begins to become slick. How cool is that?!
The past month (okay, maybe six) I feel like I have been on one long and slippery slope. I have become exhausted from thrashing around trying to recover my balance. At times I have felt like I was skidding across a greased up slip-and-slide in six inch heels just looking for something to grab onto. What a relief to be reminded that He will not let me fall!